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About EDS Australia
EDS Australia is an initiative of the Centre for Community-Driven Research (CCDR). CCDR is registered with the ACNC and is a non-profit organisation bringing much needed change to the way we think about community engagement in health and research. Our vision is to facilitate meaningful connection between service providers, research organisations, the non-profit sector, practitioners, industry, government and the communities for which they provide a service or aim to benefit. CCDR listen to the issues that people (patients), researchers, and healthcare and industry partners face and develop solutions – through community engagement – to solve those issues. We do this so that research, healthcare programs, policies and products being developed can reach the patients at the bedside sooner, and better address the needs patients and their families.
CCDR provide a Pathways Telehealth Nurse service for the EDS community in Australia. This is a free service
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